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Università degli Studi di Modena e Reggio Emilia
Corso di laurea in infermieristica - Sede di Modena

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Thesis TitleNursing care in palliative pediatric care: the role of nurse
NameSassi Giulia
Supervisor(s)Bergamini Barbara
Academic Year2016/17
Thesis typeNon research thesis

Abstract

This thesis aims to deepen the topic of pediatric palliative care, as with medical and technological advances, the number of children
bearing incurable or terminal pathologies is constantly increasing. It is appropriate to provide this type of patient with adequate careto  enable  them  to  achieve  the  best  possible  quality  of  life.  The ideal place of care, according to children and their families, seems
to be domicile. According to the Family Centered Care model, the care unit also includes the family, whose members are in turn in
need of support. In home care, the nurse plays a key role and, in the  team,  helps  ensure  adequate  care  for  children  and  their
families.  The  aim  of  the  thesis  is  to  define  the  role  of  nurse  in pediatric palliative care, starting from "Core Curriculum in Terapia del  Dolore  e  Cure  Palliative  Pediatriche-Il  lavoro  in  équipe. Curriculum  del  medico,  dell’infermiere  e  dello  psicologo”.  The reality is an inadequate care delivery, both for the poor training of health  professionals  and  for  the  low  number  of  patients  and heterogeneous clinical situations. The dissertation of the thesis is carried out using the bibliographic research method.